From Dom:

We are exploring further tests to see if the Intestinal wall is due to (Teflitious) the splitting of the intestinal wall because of trapped air. Tonight we are scheduled for a CAT Scan to explore deeper. We need her to be very still and cannot fully sedate her because of the rush (a doctor (anesthesiologist ?) will not be present). If all is good they may allow her to eat tonight but if not her white blood cell counts are at zero and it will be a long time before we can feed her.

Natalie is crying almost every moment. It is becoming madning. Then we feel guilty that we are mad at our daughter who we are starving. It really is emotionally brutal.

If Natalie moves during the 20 min scan we may have to redo tomorrow, under full anesthesia

We will probably hear tomorrow on the results of her day 15 lumbar puncture (spinal). This will determine more accurately if she will be a mid level - early responder.

Clarification on Natalie's condition and more:

from DOM--
Housing is good for now, don't have any idea when they are going to release us or ask for more time. My feeling is max 2 weeks more from now.

There is no obstruction since all the food in her system is passed - we are not feeding her except by IV nutrition (like my previous email reads)

Since her white cell count is low (what aids healing) and (Because of the chemo) the intestinal wall has not healed. There is no perforation (that means air would be spilling into her abdomen) which would be extreme pain and hard belly. Not feeding her is a precaution. Which makes it even harder. The paper thin wall is split in two with air trapped between it. When her White blood cells rise, it will heal rapidly.

Natalie Orlando

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